You are here

My Path to Mental Health Advocacy

Until I was 16, I thought that my uncle had died of cancer rather than suicide. There was always a dark joke in the family that we have a history of mental illness in our lineage. There is the distant cousin who lived in a tiger cage because, well, he thought he was a tiger. My beloved older brother was diagnosed with paranoid schizophrenia when he was 29. Four years later, he took his own life. My mother and I agree that my maternal grandmother struggled with depression most of her life. Her funeral contained quite a few loving statements about how difficult a person she could be. In short, much of my early life was spent in the quiet and shame of mental illness. It wasn’t until the death of my brother, my consequential conversion from agnosticism to Christianity and my path toward becoming a vocal advocate for mental health awareness that I began unpacking the emotional layers that come with mental illness.  

I was not diagnosed with bipolar disorder until I was 38, but I had spent most of my adult life passively and actively avoiding a full diagnosis. I acknowledged depression in my teens but tried to keep the depth of it to myself. Family tragedy after family tragedy attended my 20s, so I simply went from one crisis to another. As I rode the highs of mania — workaholism is a socially acceptable addiction — and negotiated the lows of depression — alcohol abuse can hide in plain sight — I denied to myself and others that anything was wrong. A divorce and a broken engagement attest to the disaster that was my personal life. By the time I was 36, I had earned three master's degrees while working at least one job, most often two; the lowest GPA I maintained for any of the degrees was a 3.8. The perfect 4.0 came with my Master of Divinity degree, the most important academic achievement of my life. What I was hiding was my personal chaos and torment: the hot and cold attention I paid to those closest to me, the poor impulse control that could result in my sending emails or messages that are best inscribed in a diary and talked through with a therapist, self-medication with alcohol threatening to bloom into full-blown alcoholism. My depression deepened.

Through God’s grace, I was able to hold together a loving, supportive relationship. But the depression was coming more regularly and was more intense; it also presented in my stomach, with sometimes crippling pain. I had nearly every -oscopy imaginable, and would sometimes be bedridden, non-communicative, for days on end. I was diagnosed by a GP with clinical depression after all the tests revealed nothing physically wrong with me. I went on medications and started seeing a therapist, but after a particularly bad depression jag following a pronounced mania, my beloved wife had seen enough. Exhausted and at the end of her emotional rope, she told me that I had to go in for a diagnosis from a psychiatrist. Inside of 20 minutes in that appointment, I was told that I have bipolar disorder. Subsequent analysis and therapy has produced the official diagnosis of Bipolar Disorder II with Rapid Cycling. I also struggle with general anxiety disorder, most often brought on by stress.

So like many of us, I began the painful journey of finding the right medications, life changes, behavior modifications, and slowly commenced communicating to others what my new reality entails. At one point, I had an emotional and mental breakdown and went on leave from one of my jobs (the one that provided insurance) for about four months. I managed to gather myself together enough to fulfill my basic responsibilities for an 18 hours per week ministry position, but soon it became clear to me that the other job was not conducive to total health and wellness. I resigned and consigned us to a life of limited financial means.

I am a small town pastor trying to guide a community that has been around since 1860 into an age that may prove to be the first post-Christian period in 2,000 years. That sounds more daunting than it is, perhaps. I grew up in Yellow Springs. It is a special place filled with wonderful people. A great deal of my identity as a person is owed to the town that raised me. I didn’t end up here. I chose to live here. It is where I met my wife. It is where my friends — some since grammar school — live. It is a place where multiple generations worship in the same church and live side by side or even in the same house. It is home of Antioch, both the college and the university, that put food on our table for over three decades and from where I earned my BA degree. There is a proud Antioch legacy: Horace Mann and Arthur Morgan, Corretta Scott King and Arthur Lithgow, Rod Serling and Walter Anderson. My father is an emeritus professor, a point of great pride for him and for the family. I truly love where I live.

That’s where I am physically. Emotionally and mentally? Huh. I dunno. I find myself at an interesting “here” moment, and I ask myself what that means: scrapping along with unbelievable student loan debt, medical debt, tax debt, insurance costs and new loans for my doctorate; my here is a place of both uncertainty and deep faith. Financially, things are a disaster. But my med levels are working. I am not drinking alcohol. I’m overweight — that weight gain with meds is no joke, right?!? — but I’m feeling contented. Not happy. Happy is momentary. Happy is an experience, and one that I love to enjoy, but contentment is more than a mood: It is a state of being. My here is accepting that I am an unconventionally religious person, but my religiosity drives me to serve others without proselytizing. Like St. Francis of Assisi said: “Preach the gospel at all times; when necessary, use words.” It’s also necessary to point out that I don’t look like a typical pastor. I have tattoos. Lots of them. I have dreadlocks. I wear a full beard and a scarf over my head in solidarity with my Muslim and Sikh brothers who are profiled. If they are going to be judged and stopped, do the same to me. My “here” is filled with possibilities, but also is full of limits. My Bipolar Life.

If you’ve made it this far, thanks. I hope to hear from you. Here’s the deal. I’ve signed up to write one of these a month. It might be kind of an arrogant thing to say, “Hey, what I think is profound. Read me.” That’s not it at all, though. Community is important to me, and that includes online. So, here goes: I will write about God, but that’s not the only thing I plan to write on. I’m not here to proselytize (remember Francis?) or convert anybody, I just like to know I’m not alone. Having bipolar is hard. That’s an understatement. But it can also be beautiful and powerful and good. I’m honest, almost to a fault. I promise not to lie to you, or to give you false advice or tips. I’m struggling through this whole thing, too. What I want to offer and discuss are things we can do spiritually to help ourselves to enjoy the good times and to negotiate the rough ones. What sort of insights might we make if we dedicate some time to reflecting on what we need to feel centered in ourselves, to make this skin a bit more comfortable for our souls?

Be well, do good works and love one another. I’ll try to do the same.

You can read more of Pastor Aaron's writing on his personal website and see the rest of his IBPF posts here

Comments

I really liked reading your blog. I've been diagnosed with bipolar for a couple of years now. I'd been very ill for a couple of years before, so getting the right medication and starting to feel better was wonderful. I'm involved with a group who want to start a recovery college in our town. It's a small remote town, a lovely place. I liked your description of why you live where you do. I choose to live here. I love our church, a Catholic church, with about half Aboriginal congregation.

I. Have bp 2 and currently am suffering the depressive phase since June
The meds are not working. I got bored from my job. I can't get out of bed.

Pastor Aaron,
I strongly relate to you on the points of bipolar and faith. I was drawn to your blog post because you mentioned advocacy. I am pursuing publishing my own personal story of bipolar disorder and have this burdened on my heart and I think I know why. When I was in the hospital - no one knew what I was going through. No one. I feel like the doctors and staff were miles away from understanding my mind and in that, I was emotionally and spiritually abused. I am beginning a journey to be a forerunner on mental health advocacy. I don't want to be a social worker or a therapist but I want to stand up for patients - stand up for them so that they are treated like humans, not the lowest class in a caste system.

Well, I digress, but know you are not alone in your journey. God has met me every step of the way and I'm sure He's got you in His hands too.

Blessings on you,
Katie

Thank you for writing what I am too tired to even say. Peace & Love ❤️

I just want to say I too suffer from bi-polar 2 w rapid cycling. Life can be very challenging to navigate. I am also very spiritual and my particular belief is in Jesus but I live and let live and like you, support all. God's whole law can be summed up in one statement, love God and love thy neighbor as thyself. Thank you for your very well written blog. I only hope one day that the intelligence I once had comes back so I can write as well. I have been writing my whole life and those closest to me say it's my gift. I am educated but being disabled and home since 2003 I lost all my grammar skills. Please keep writing and inspiring others. God bless

I have Bipolar 1 disorder and went through a quite severe episode of mania and depression this year after my brother died. My husband also divorced me as this was his first time seeing what true bipolar entails. It’s been since January and I’m still recovering and do not feel myself yet after all the trauma and different med changes. Anyways, during my manic episode, I had a lot of spiritual experiences. For example, my husband and I were still together then and this was a few weeks after my brother died and we met a stranger and nice guy and hung out with him for an evening. Every time my husband would go to the bathroom, he would tell me about the spiritual oppression he had experienced all throughout his life. Then, one time he pointed straight at me and said “Heather you know who I am” and his entire form changed before me. We took a photo of him before the night was over and his face was all faded out and white. I don’t know if he was an angel or what but still desire to interpret this experience. I also struggle with knowing where I belong spiritually. I almost became catholic and always feel drawn there when manic and I don’t know why. I grew up in a nondenominational church but still am very confused. I still have constant daily negative thoughts and my mood is still quite depressed/irritable and I just desire to have the fruit of the spirit that Jesus speaks of possessing through the Holy Spirit. I haven’t been sleeping well either (4hrs) a night which may be affecting me as well. I’m supposed to take seroquel for sleep but it scares me already being on abilify . I just wish I could find where I belong as far as church goes and find peace and comfort and joy in my soul despite this illness and understand my past experiences while in the throws of mania and depression. Sometimes when I’m deeply depressed it feels demonic it’s so bad....

we can imagine how tough this must be for you. We are deeply concerned about you and we want you to know that help is available to get you through this. If you are in a crisis, please call this number which is a crisis line with listeners trained to help you: 1-800-273-TALK (8255), as we are not a crisis center. You can also reach the Crisis Text Line by texting START to 741-741. For a list of international crisis centers visit this page:http://iasp.info/resources/Crisis_Centres/

If you are not in a crisis and would like someone to talk to online, we recommend the websitewww.7cups.com It’s a free, anonymous online chat with a trained listener.

Add new comment

PLEASE POST COMMENTS ONLY. If you are in need of an IBPF resource, please contact Aubrey @ agood@ibpf.org. If you are in crisis, please call 1-800-784-2433.
CAPTCHA
This question is for testing whether or not you are a human visitor and to prevent automated spam submissions.