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Getting Past Being Our Community Horror Story

On Presidents’ Day, a school holiday, I awoke to an unscheduled day. I needed something to do with my daughter Marilla, so I decided to take her to the park. (My other little girl, Avonlea, headed for her best friend’s house.) The weather was clear and sunny, but my mind was stormy and gloomy. I wanted to hide in my bed, read a book, and not have to interact with anyone.  It was actually a promising sign of my recovery that I was able to leave the house, so off we went.

The park was near our home and frequented by many families. My park experiences have ranged from enjoyable to atrocious. One of my worst visits occurred when I tripped over an innocent-looking root on a perfectly flat trail.  I was alone and no one saw me fall. I slammed down to the ground, breaking my collarbone from the impact. Luckily I had my cell phone and I reached Craig for help.  More pleasant times included the afternoons I spent there with a kindred spirit mom while our kids had fun playing tag with one another. We’ve held birthday parties for both of our girls at these grounds. During those events I’d feel happy watching my girls’ excitement, but I also suffered with social anxiety.

It is here, at this park, where I’ve been both “B.D.” and “A.D.”:

Before diagnosis and after diagnosis.

After we moved to this area with baby Avonlea, I wanted to meet other moms.  Through the internet I located a baby playgroup that met in my neighborhood.  I immediately joined the small group and met some friendly moms.

This was “B.D.”. I would not become the “Bipolar Mom” in our community for almost two more years.  It’s hard for me to believe that back then I was perceived by others as relatively normal.  

Then fall of 2007 came along, I gave birth to my second beautiful girl Marilla, and all hell broke loose after her debut.  My lack of sleep, a genetic predisposition to bipolar, and hormones combined to trigger postpartum bipolar disorder and the even more rare condition of hypergraphia, an overwhelming desire to write.  Two months after Rilla was born, I had full-blown postpartum mania. I reluctantly admitted myself to our local hospital’s locked-down mental health unit. Despite the fact that the building opposite my unit had a fully equipped maternity wing, the staff couldn’t find me a breast pump to ease my painful engorgement.  (It was such a nightmare admission that we forgot my Medela pump in the car.)  I actually had to call a friend on the pay phone to loan me her pump. The hospital’s ineptitude with the breast pump was a prelude to their incompetence in every other aspect of the place.  I could have run a better unit, especially in my energetic manic state. 

After my stay at the hospital, I entered a new epoch of my life: “A.D.”

When I returned home after my hospitalization, our extended family, friends and acquaintances knew what had happened to me. I was ignored by many people because I didn’t have a “casserole” disease that garnered sympathy and assistance. It broke my heart how these individuals were unable to offer empathy and practical support.  

Where I live, the mental illness stigma is still very strong.  This is a conservative rural community.  As far as I know, I am the only “out” mom with bipolar around these parts.  I founded our county’s chapter of the DBSA (Depression and Bipolar Support Alliance) and I created my first women’s support group. We started with over twenty members, but the group eventually ran out of steam when I relapsed. When I created the women’s support group, I was profiled in two newspaper articles that included pictures of me with my girls. I don’t regret doing that, but I believe that my going public had personal repercussions.  

Over the years since I was diagnosed, I didn’t think I came across as “crazy” to others – anxious, yes, but not psychotic. I know the publicity I did (some of which mentioned I had been hospitalized) backfired on me socially. I sensed that some school moms who knew of my medical history didn’t want to develop friendships with someone like me. I’ll never know that for sure, of course, but my intuition tells me I’m right.  I can’t go back to undo my past, and I wouldn’t change my actions if I could, but it’s isolating and lonely having bipolar where I live.

Since 2007 I’ve only been approached by two other mothers with bipolar.  I’m incredibly fortunate that both of them have become close friends. One of them even had ECT with the same doctor who helped me. These women’s cases were less severe than mine, as none of them were ever hospitalized for mental illness.  I apologize for being a whiner, but I feel like a pariah for being known as the worst-case “crazy mom” ’round here.  

More importantly than any of the above is that I don’t want my girls adversely affected socially because their mom has a brain disorder. A point that keeps popping up in my head is that I can’t be the only local mom who was in a locked-down unit for mental illness, but I feel like I am. There are thousands of folks in the large valley where I live, and statistically speaking, there is no way there aren’t other moms who have been hospitalized for bipolar. We don’t have support groups around here where I could potentially meet some of those moms. (I’m not starting yet another group, as I’m burned out.)

I may never completely get past feeling ashamed about being the “community horror story” but as you can infer by reading this blog post, I have a ways to go. I want to come to better terms with my past, but I can’t do it alone.  My husband, close friends, and therapist can help me navigate this tricky issue.  

We all harbor darkness such as sexual abuse, self-harm or depression.  I want to remember each and every day that I am not the only one suffering, and that it’s possible that other “normal” moms I encounter may be keeping their serious mental health issues under wraps.  If I try my best to be productive and focus on the positives in my life, I think my shame in having a mental illness will fade in the years to come.

Comments

I have no shame in My bipolar , just massive amounts of fear because I cycle so much and dont know who I will be or what I will feel the next day let alone today.

So glad you are sharing your story with such vulnerability, Dyane. We need you.

Michael and Jenn, thank you so much for your comments. Michael, I can relate to that sense - that fear - of not knowing from day to day (or hour to hour) how you will be feeling. I commend you for checking out this website and I'm so pleased that you are not ashamed for having bipolar. Jenn, you are the best! We need you as well and it's wonderful to have you in my corner! take care, you two!

Don't worry I have been through similar outcast situations, including inlaws who labeled me as crazy and BP was in the mind and I should just get off the meds and pull myself together! Thank you so much for sharing your story, you have given me strength and hope. Public awareness is much needed in Australia also.

First off, I love your country & went there myself when I was 24. I have some online Aussie friends who have bp and they tell me the same thing - public awareness is sorely needed overseas. Thank you so much for your comment. The moment I read it, I felt understood and it's a great feeling. We need to stick together in facing those judgmental inlaws and the public-at-large. Take care and have a wonderful day, Bendy!

Maybe we should consider all those non BP people as weird as they have such boring lives knowing day after day what they will feel like (usually anyway). I hate this rollercoaster - coming off a whole year of rapid cycling a couple of days in one mood state would be such a novelty. I admire all you are able to do with managing your status as wife and mum, your BP mood swings and still have some energy left for promoting BP as you do. Keep it up for those of us who at the moment can't manage more than getting through each day intact (New Zealand is not that BP friendly either although there are some good people doing good work here as well).
Don't Judge what you Don't Know.

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